Blake, Felicity & Hannah's stories so far...
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Blake



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Blake was born on August 11th 1997. 
He was doing everything that a normal young child would do. When he was 16 months old he began to go backwards, losing his speech and eye contact and repetitively lining things up.
Blake was taken to several doctors to find out what was wrong. At the age of 2 years 7 months he was diagnosed as being Autistic. In 2002 Blake was making no eye contact and was not able to talk, though he did achieve every goal until 18months of age. He was like a newborn baby again.
Blake had major head banging and wrist biting problems, would not sit with a seat belt on, would only eat with his fingers and was gluten and dairy intolerant

Due to not being able to get Blake into early intervention or any help for him we moved from Sydney to Bowral as we were able to access some early intervention at Moss Vale Public school. On Blake's 5th birthday he had his first Epileptic fit. So we were hit with another blow with finding out that Blake is Epileptic. Blake then started to go to a school at Mittagong called Tangara, a school for disabled children. Blake attended Tangara for 18 months. We saw no improvement in Blake at all. He was in fact only copying the other disabled children that also attended the school. While Blake was attending Tangara school he was diagnosed as being severely autistic. Blake had no language, eye contact and was not toilet trained.
We were then introduced to the Son-Rise Program™ by ‘Rainbow’ of the Southern Highlands. Through 'Rainbow' Blake was able to attend the Autism Treatment Centre of America™ in December 2003 for an 'Intensive Program'. Before attending this program Blake only had a couple of words. When we returned we took Blake out of Tangara School and began to home school him in 2004.
Since starting the Son-Rise Program™ with the help of volunteers Blake can now say over 500 words! He gives almost normal eye contact and is interactive his brother Bailey and others. He sits with a seat belt on can have a meal with little assistance using a fork.

We would be lucky to get 12 hours a week in Blake’s playroom but we are finding more and more support slowly. Blake now has the diagnosis of moderate to severe Autism.

The Son-Rise Program™ has impacted not only Blake but all of us as a family. Our precious time spent together is now a loving and more enjoyable lifestyle. I along with my husband and Blake's sibling Bailey will never be the same because of what impact the 
program has had.
 

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Felicity
 
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Felicity turned 8 in October this year.
At 11 months of age Felicity would not make any form of eye contact – she seemed to be looking through people. Felicity would stare at her pointer finger for hours on end – we named this her fairy.
As Felicity got older she was very withdrawn and displayed very anxious behaviour when she was not within her normal routine. She had little to no eye contact and spent much of her days either doing repetitive stimulating behaviours such as jumping or posting items into and out of containers. She often clung to our clothes and would cry loudly when she was removed from us. She would also do this at school with her carers which made her very difficult to manage as she always had to stay contacted to you. At 4 years old, she started to display quite depressed behaviour where she would want to sleep all the time and she became almost inert. At times she would show little sparks, laughing out loud and jumping around. She could not ask for anything she needed and was totally dependant on us for the very basics: toileting, dressing and feeding. She had no language and no real understanding of why you would use language as she did not know how to request, even physically.

Felicity has been doing her Son-Rise Program
for just over 2 years now. We started hour by hour, slowly building up to two full days a week with 3 days of school. At the start of this year 2008, we finally managed to provide her with the full 5 days of home-schooling and take her out of school.

Now Felicity has beautiful and spontaneous eye contact with us that is building all the time. Felicity request things all the time like food, drink, and most importantly interaction with others. She is demonstrating with actions a comprehension of our language and she is starting to use some basic words. She is happy and settled and most of the anxious behaviour has disappeared. She has toilet trained herself and is no longer holding food in her mouth, but trying many new foods. She looks at us when we have a conversation, she often smiles at people she knows and she is learning some basic games to play with us. All in all, she has far exceeded out expectations and it has happened since we started her Son-Rise Program
alongside bio-medical intervention.

We never imagined this to be possible. The Son-Rise Program
has given us as a family new hope and a positive outlook for Felicity’s future. Before we were just ‘coping’ with Felicity and her behaviors and felt we were ‘policing’ her every move. Now we are interacting with her and enjoying every moment with her, we are happier and no longer thinking we are living with a life sentence of disability. We believe that Felicity is wonderful just the way she is, even if she does not get any better.
It has given us hope! We no longer see Felicity and her disability but rather we see her uniqueness and the wonderful changes she has made in our lives.


Hannah
 
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Hannah was 2 when she was first diagnosed as Autistic however the signs that all was not well were evident long before. She did not develop any language and was disinterested in people, even her own family. She clung to a strict and limited routine and was terribly upset if we didn't adhere. She spent her time rolling over the backs of couches, winding herself in curtains and, literally, climbing the walls! She even spent a week with a piece of fabric on her neck held down by her chin! She was, nevertheless a sweet and quirky child who was relatively happy in her own world... until she began school.
At the age of three she began at a preschool for autistic children and graduated from there to a special school. She became anxious, aggressive, violent and refused to speak and, for some months, to eat. She pulled the house apart destroying blinds, defecating all over the carpets and getting into anything she could find. Our house quickly became "lockdown" and had there been adequate high-shelf space, I'm sure most of the house would have been up there. If anything her condition deteriorated and she became unreachable. She had no skills and no desire to interact with anyone outside of her own small world. With no expressive language, no self-help skills and no social skills, there was little anyone could do except to "manage" her and try to ensure she caused no harm to herself or others.

We began Hannah's Son Rise Program™ in January 2006 (part time) and, after doing the 'Start Up' course at The Autism Treatment Centre of America™ in May 2006, I immediately pulled her out of school and began an intensive full time program. We have our playroom running between 25 and 40 hours a week depending largely on the participation of volunteers.
 
Hannah is a new child, a tad naughty and incredibly cheeky with a spark of life that we are thrilled to see. She plays all day long and it is now us that get worn out from all the interaction! She has lovely eye contact and thousands of words. She speaks in sentences and understands that speaking gets people moving. So if she's asking for something VERY unlikely (such as chocolate) she will say "want chocolate please" while looking in your eyes delightfully. I'd say based on that she has NO sign of an intellectual disability! She is happy to interact all day long.

She has also improved so much in physical health! With the help of her doctor (Dr Robyn Cosford) she is recovering daily from her significant challenges. Every biochemical pathway in her body was damaged; her gut was in a terrible state and her immune system in overdrive. She had a mercury reading that was through the roof! It has been a huge undertaking involving a radical diet, supplements, clearing her impacted bowel, ridding her body of parasites usually only found in third world countries and addressing her nutritional deficiencies- despite her food intake she gained no weight and seemed to be unable to derive sustenance from it. Her body was struggling so much just to keep the barest functions going. She was chronically low in B12 and many vital body processes had simply stopped. Hannah is definitely on the path to health and as that improves, so does her outlook on life as a whole!

Hannah is no longer "Hurricane Hannah"; a destructive force that blew our lives apart. We see her now, as she is a beautiful girl, unique and special, who blesses us every day with her pure and extraordinary presence. While we would love for her to be in health and peace in her life, we are totally happy with her and appreciate the experience we have had in having her.

Our lives will never be the same. Before the Son-Rise Program™, I lived wishing for the day it would all just get better, struggling through every moment. Now I love my life and wouldn't change it for anything! I know that even after Hannah has finished her program I will continue to learn and grow from this. I know also that I will continue teach Son-Rise™ to others. I have no doubt that Hannah will be able to do anything she is motivated to do. And now, whatever that choice is, I will be happy with it.
 


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